Name | ABI (Acquired Brain Injury) |
See Brain Injury |
Name | ABI (Acquired Brain Injury) |
See Brain Injury |
Name | ADD (Attention Deficit Disorder) |
See Attention Deficit Disorder (ADD) |
Name | ADHD |
See
Attention Deficit Hyperactivity Disorder (ADHD) |
Name | APS |
See Antiphospholipid Syndrome |
Name | AVM |
See Arteriovenous Malformation |
Name | Acoustic Neuroma |
Related to/Also known as | Vestibular Schwannoma Neurofibromatosis Type 2 |
Symptoms of Acoustic Neuroma |
A slow growing benign brain tumour (non-cancerous). First symptoms are usually hearing loss or tinnitus, and, more rarely, balance problems. |
Useful national contacts | British Acoustic Neuroma Association
Tel. 0800 652 3143 |
Children & young people | Acoustic neuroma![]() |
Online Acoustic Neuroma resources |
Coronavirus - information for people with neurological problems (Brain & Spine Foundation) Acoustic neuroma (vestibular schwannoma) World Language Videos (U.S. Acoustic Neuroma Association) Acoustic neuroma and driving
|
News and events | |
Our resources |
The library at the Brain Charity has a range of resources on Acoustic Neuroma and on a wide range of disability related issues. |
Name | Acquired Brain Injury (ABI) |
See Brain Injury |
Name | Alice in Wonderland Syndrome (AIWS) |
Related to/Also known as |
Todd Syndrome Migraine, Migraine aura |
Symptoms of AIWS |
Source: Neurology Times, August 2016) |
Useful national contacts | The Migraine Trust (Migraine Action has merged with the Migraine Trust) Tel: 020 7631 6970 ![]() |
Children & young people | Alice in Wonderland syndrome: A rare neurological manifestation with microscopy in a 6-year-old child ![]() |
Online AIWS resources |
Coronavirus - information for people with neurological problems (Brain & Spine Foundation) The Alice in Wonderland syndrome (PubMed) "I have Alice in Wonderland syndrome" (The Guardian newspaper, 2008)
|
Our AIWS resources |
The library at the Brain Charity has a range of resources on Alice in Wonderland Syndrome (AIWS) and on a wide range of disability related issues. Visit our library to read our copy of the Brain and Spine Foundation's booklet on Migraine, which includes information on Migraine Aura. |
Name | Alzheimer's |
Related to/Also known as | Dementia |
Symptoms of Alzheimer's |
Dementia is a term used to describe various different brain disorders, that have in common a loss of brain function that is usually progressive and eventually severe. The most common type of dementia is Alzheimer's Disease. Symptoms of dementia include loss of memory, confusion and problems with speech. |
Types | There are over 100 different types of dementia, including Alzheimer's Disease. For more information see the Alzheimer's Society website ![]() |
Useful national contacts |
Alzheimer's Society (England, Wales and Northern Ireland) Carer Information and Support Programme (CrISP) Alzheimer's Scotland |
Children & young people |
Explaining dementia to children and young people (Alzheimer's Society) Resources for Children and Young People (Dementia UK) |
Online Alzheimer's resources |
• Effect of coronavirus on people living with dementia (The Brain Charity) Vaccines for coronavirus (COVID-19) (Alzheimer's Society) Coronavirus: Questions and answers (Dementia UK) Should a person with dementia wear a face mask for coronavirus? (Alzheimer's Society) Coronavirus: Information for people affected by dementia (Alzheimer's Society) Vaccines for coronavirus (COVID-19) (Alzheimer's Socity) Alzheimer's disease (NHS website)
Publications in other languages (Alzheimer's Society)
|
News and events | |
Our Alzheimer's resources | ![]() The library at The Brain Charity has a range of resources on Alzheimer's and on a wide range of disability related issues. Visit our library to read our copy of the Alzheimer's Society's booklet "Talking To Children About Your Illness". |
Name | Aneurysm |
Related to/Also known as | See also Subarachnoid Haemorrhage (S.A.H.) |
Symptoms of Aneurysm |
A brain aneurysm is a balloon-like swelling resulting from a weakness in the wall of one of the blood vessels supplying blood to the brain. |
Types | If the aneurysm bursts/ruptures that results in a bleed this is brain haemorrhage. |
Useful national contacts | BASIC (Brain and Spinal Injury Charity) ![]() Phone: 0161 707 6441 Email: This email address is being protected from spambots. You need JavaScript enabled to view it. Brain and Spine Foundation ![]() Helpline: 0808 808 1000 |
Children & young people | "Aneurysms in children under 18 years of age are rare". Pediatric Aneurysms (U.S. Brain Aneurysm Foundation) ![]() |
Online resources |
Coronavirus - information for people with neurological problems (Brain & Spine Foundation) Brain aneurysm (NHS Choices website)
|
Our resources | ![]() The library at The Brain Charity has a range of resources on Aneurysm and on a wide-range of disability related issues. Visit our library to read our copy of the U.S. Brain Aneurysm Foundation's Youth Fact Sheet 'What is a brain aneurysm?'. |
Name | Angelman Syndrome |
Related to/Also known as | |
Symptoms of Angelman Syndrome |
Source: Epilepsy Action |
Useful national contacts |
AngelmanUK |
Children & young people |
Sibling support (AngelmanUK) Preparing for adult life (Contact, charity for families with disabled children) |
Online resources |
Coronavirus information and useful links (AngelmanUK) Angelman syndrome (NHS Choices) Angelman syndrome (Contact, charity for families with disabled children) Angelman syndrome (Epilepsy Action)
|
News and Events | Survey: Treatment of Childhood Neurological Conditions (British Paediatric Neurology Association, September 2020)![]() |
Our resources |
The library at The Brain Charity has a wide range of resources on disability related issues. |
Name | Ankylosing Spondylitis (AS) |
Related to/Also known as | Arthritis |
Symptoms of Ankylosing Spondylitis |
Source: Versus Arthritis |
Useful national contacts |
NASS (National Ankylosing Spondylitis Society) Rare Disease UK ![]() |
Children and yound people | Juvenile Ankylosing Spondylitis (Stanford Children's Health, U.S.) ![]() |
News and events | |
Online resources | Advice on COVID19/Coronavirus (NASS)![]() Ankylosing spondylitis (NHS Choices) COVID-19 and SpA (Spondylitis Association of America)
|
Our resources |
The library at The Brain Charity has a range of resources on Ankylosing Spondylitis and on a wide range of disability related issues. Visit our library to read our copy of the Pain Relief Foundation's booklet on Arthritis, which includes information about Ankylosing Spondylitis. |
Name | Antiphospholipid Syndrome (APS) |
Related to/Also known as | Hughes Syndrome Sticky Blood Syndrome |
Symptoms of Antiphospholipid Syndrome |
APS is sometimes called 'sticky blood syndrome'. This is because people with it have an increased tendency to form clots in blood vessels (also known as thromboses). Any blood vessel can be affected including the veins and the arteries. |
Useful national contacts | APS Support UK (formerly Hughes Syndrome Foundation)![]() Tel: 0300 323 9943 |
Children & young people | Antiphospholipid Syndrome (Riley Children's Health, U.S.)![]() |
Online resources |
Information about the COVID-19 virus for people with APS (APS Support UK) Antiphospholipid Syndrome (APS) (NHS Choices) "Hughes Syndrome: simple to treat but all too often ignored" (Daily Telegraph, February 2009)
|
Our resources |
The library at the Brain Charity has a range of resources on Antiphospholipid Syndrome and on a wide range of disability related issues. |
Name | Aphasia |
Related to/Also known as | Dysphasia |
Symptoms of Aphasia |
Aphasia is an acquired disorder of language, usually caused by stroke, head injury or other neurological condition. People with aphasia find it difficult to understand, speak, read or write language; yet their intellect remains intact. |
Types | |
Useful national contacts |
Stroke Association Aphasia Re-Connect |
Children & young people |
I CAN Afasic Language Disorders: Aphasia (Royal Children's Hospital Melbourne) |
News and events |
Aphasia project on Zoom (the Brain Charity) Neuro Device, a Polish company, has developed an innovative rehabilitation system for people with post-stroke aphasia (April 2018) You can watch the Polish ambassador to Britain talking about this on YouTube: |
Online resources | Information on coronavirus for stroke survivors (Stroke Association) Aphasia (NHS Choices) ![]()
|
Our resources | ![]() The library at The Brain Charity has a range of resources on Aphasia and on a wide range of disability related issues. Visit our library to read the book Children with Acquired Aphasias by Janet A. Lees. |
Name | Arachnoiditis |
Related to/Also known as | |
Symptoms of Arachnoiditis |
Arachnoiditis describes inflammation which occurs inside the spine, around the spinal cord and spinal nerve roots. Can develop after back injury, spinal surgery, infections such as meningitis, and sometimes after injections into the spine. Pain comes from nerve roots and generally impacts the lower parts of the body, but can affect the spine in the head, neck and upper back. Damaged nerve roots can cause muscle spasms and jerks, and weakness of muscles. |
Types | |
Useful national contacts | The A Word Support Group![]() |
Children & young people |
Arachnoiditis (Child Neurology Foundation, U.S.) ![]() |
Online resources |
Coronavirus - information for people with neurological problems (Brain & Spine Foundation) Arachnoiditis (U.S National Organization for Rare Disorders) ![]()
|
Our resources |
The library at The Brain Charity has a range of resources on Arachnoiditis and on a wide range of disability related issues. This includes a copy of the Arachnoid Trust's booklet What is Arachnoiditis? by Lina Talbot. |
Name | Arnold-Chiari Malformation |
See: Chiari malformation |
Name | Arteriovenous Malformation (AVM) |
Related to/Also known as | Arteriovenous Fistula (AVF) Angioma Arteriovenous Anomaly Cavernous Malformation Venous Malformation Pulmonary Arteriovenous Malformations (PAVM) |
Symptoms of Arteriovenous Malformation |
AVMs can occur in the brain, spine, lungs, kidneys and the skin. They occur following the abnormal development of blood vessels, which produces a tangle of blood vessels. |
Types | |
Useful national contacts | The Butterfly AVM Charity![]() |
Children & young people |
Arteriovenous Malformations (for Parents) (KidsHealth website) Venous malformations (Great Ormond Street Hospital) |
Online resources |
Coronavirus - information for people with neurological problems (Brain & Spine Foundation) Arteriovenous Malformation (AVM) (The Birthmark Support Group website) Arteriovenous malformation and driving (GOV.UK) Vascular malformations of the brain (Brain & Spine Foundation) Arteriovenous Malformation Information Page (U.S National Institute for Neurologogical Disorders and Stroke)
|
Our resources |
The library at The Brain Charity has a range of resources on Arteriovenous Malformation (AVM) and on a wide range of disability related issues. This includes a copy of the Brain & Spine Foundation's booklet "Vascular Malformations Of The Brain". |
Name | Arthritis |
Related to/Also known as |
Inflammatory Arthritis |
Symptoms of Arthritis |
Arthritis is a condition involving inflammation of the joints, which may then become very painful. Note that Arthritis is not a neurological condition; however, there are several conditions that come under both Arthritis and Neurological Conditions as an 'umbrella' term. |
Types |
There are over 200 different types of arthritis. The most common is Osteoarthritis, which usually develops gradually over a few years. Rheumatoid Arthritis is a condition which causes the joints in your body to become inflamed. It can be persistent or occur in flare-ups. The Versus Arthritis website includes a list of types of aArthritis. |
Useful national contacts |
Arthritis Care and Arthritis Research UK have joined forces and are now Versus Arthritis ![]() Helpline: 0800 298 7650 Find your local support group: ![]() |
Children & young people |
Juvenile Idiopathic Arthritis (JIA) (Versus Arthritis) Young people (Versus Arthritis) |
Online resources |
Coronavirus (COVID-19) - what is it and where to go for information (Versus Arthritis) Coronavirus and Rheumatoid Arthritis (NRAS) Arthritis (NHS Choices website)
|
Our resources |
The library at The Brain Charity has a range of resources on Arthritis and on a wide-range of disability related issues. This includes copies of booklets by Arthritis Research UK. |
Name | Asperger's Syndrome |
Related to/Also known as | Autism Spectrum Disorders Autism |
Symptoms of Asperger's Syndrome |
Asperger's Syndrome is a form of autism, a condition which affects the way a person communicates and relates to others. People with Asperger's Syndrome have difficulty in communicating and with social relationships, and exhibit a lack of imagination and creative play. They have fewer problems with language compared with those with autism, and do not usually have the accompanying learning difficulties associated with autism. |
Types | |
Useful national contacts | Asperger's Syndrome Foundation![]() The National Autistic Society Helpline: 0808 800 4104, 10-4 Mon-Fri ![]() |
Children & young people | Parents and carers (National Autistic Society)![]() Family support (National Autistic Society) ![]() |
Online resources |
Coronavirus Resources (National Autistic Society) How to support a pupil with Asperger’s Syndrome (School Badge Store) Warning: So-called cures and dodgy interventions (National Autistic Society, March 2019) What is Asperger Syndrome? (National Autistic Society) Autism spectrum disorder (NHS Choices) ![]() Autism Spectrum disorders including Asperger's syndrome (Contact, charity with families with disabled children ![]() Lesser-known things about Asperger's syndrome (BBC Ouch blog)
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News and events |
Coronavirus: Government clarifies guidance on exercise (National Autistic Society, 9 April 2020) Survey: Treatment of Childhood Neurological Conditions (British Paediatric Neurology Association, September 2020) |
Our resources |
Visit our library to read Freaks, Geeks & Asperger Syndrome: A user guide to adolescence by Luke Jackson. |
Name | Ataxia |
Related to/Also known as | Cerebellar Ataxia |
Symptoms of Ataxia |
People with Ataxia have problems with co-ordination and balance. Cerebellar Ataxias are a group of rare neurological disorders, many of which are inherited. There is large variation in the severity of the different types, and the rate of progression varies between individuals. |
Types |
Cerebellar Ataxias - often designated by numbers, see the information on the Ataxia website below. Friedreich's Ataxia (FA/FRDA) - an inherited, progressive condition, which affects the nervous system. Ataxia-Telangiectasia - A-T is a rare, degenerative, inherited disease which affects many parts of the body and causes severe disability. |
Useful national contacts | Ataxia UK![]() Helpline: 0845 644 0606 Find your local support group: ![]() • The Ataxia NW Support Group meets at The Brain Charity • The Ataxia NW Support Group now meets online using Zoom A-T Society Supports people living with ataxia-telangiectasia Tel. 01582 760733 ![]() |
Children & young people | Sibling care (Ataxia UK) Advice for young people living with someone with ataxia ![]() Friedrich's ataxia (Ataxia UK) ![]() Education and A-T (A-T Society) The A-T Society can offer help and guidance to Education Professionals ![]() |
Online resources |
Coronavirus (covid-19) update for people with ataxia (Ataxia UK) Ataxia (NHS Choices) For speech and language therapists (Ataxia UK) About Ataxia Telangiectasia (Action for A-T)
|
News and events | |
Our resources |
You can read our copies of Ataxia UK booklets, including "Ataxia: a Parent's Guide". |
Name | Attention Deficit Disorder (ADD) |
Related to/Also known as | Attention Deficit Hyperactivity Disorder (ADHD) |
Symptoms of Attention Deficit Disorder |
ADD is a common condition, affecting more boys than girls. It is an impairment of either activity or attention control (or both), and impacts on concentration, impulse control, hyperactivity, motivation and time awareness. |
Useful national contacts |
ADDISS ADDers |
Children & young people |
Information specifically for Teenagers (ADDers)
Preparing for adult life (Contact, charity for families with disabled children) |
Online resources |
Attention deficit hyperactivity disorder (ADHD) (NHS Choices) Attention Deficit Hyperactivity disorder (Contact , charity for families with disabled chldren)
|
News and Events | Survey: Treatment of Childhood Neurological Conditions (British Paediatric Neurology Association, September 2020)![]() |
Our resources |
Visit our library to read Creating Kids Who Can Concentrate: Proven strategies for beating A.D.D. without drugs by Jean Robb and Hilary Letts. Or have a look in your local library for this book. |
Name | Attention Deficit Hyperactivity Disorder (ADHD) |
Related to/Also known as | |
Symptoms of ADHD | A common condition, affecting more boys than girls. It is an impairment of either activity or attention control (or both), and impacts on concentration, impulse control, hyperactivity, motivation and time awareness. |
Types | |
Useful national contacts | ADDISS Tel. 020 8952 2800 ![]() ADDers.org ADHD Foundation |
Children & young people |
Information specifically for Teenagers (ADDers) Preparing for adult life (Contact, charity for families with disabled children)
|
News and events |
Survey: Treatment of Childhood Neurological Conditions (British Paediatric Neurology Association, September 2020) |
Online resources |
Attention deficit hyperactivity disorder (ADHD) (NHS Choices) Attention Deficit Hyperactivity disorder (Contact , charity for families with disabled chldren)
|
Our resources |
Visit our library to read Can I tell you about ADHD? A guide for families, friends and professionals by S. Yarney and C. Martin. Or have a |
Name | Autism |
Related to/Also known as | Asperger's Syndrome |
Symptoms of Autism |
Autism is a lifelong developmental disability, which affects the way a person communicates and relates to people around them. People with autism have difficulties with everyday social interaction, with social communication (including not understanding facial expressions and tone of voice), and with imagination. This triad of impairments can occur by itself, but is often accompanied by other developmental disorders and learning disabilities.
|
Types | |
Useful national contacts |
The National Autistic Society Autism Initiatives ![]() Autism Assistance Dogs ![]() Scottish Autism ![]() Tel. 01259 720 044 Autism Northern Ireland ![]() Tel. 028 9040 1729 Autism Cymru ![]() Tel: 02920 463 263 Autistica charity which funds and campaigns for research to understand the causes of autism, improve diagnosis, and develop evidence-based interventions ![]() |
Children & young people | FACT (Families of Autistic Children Together)![]() Parents and carers (National Autistic Society) Family support (National Autistic Society) Ambitious About Autism (for children and young people with autism) Preparing for adult life (Contact, charity for families with disabled children) |
News and Events |
Information about coronavirus vaccines (National Autistic Society) Survey: Treatment of Childhood Neurological Conditions (British Paediatric Neurology Association, September 2020) Blue Badge rules have changed in England for autistic people (National Autistic Society, 2019) 'Media speculation about US President's views on autism' (National Autistic Society, February 2017) 'Vaccines not linked with autism, study finds' (NHS website, May 2014) |
Online resources |
Help for people with a learning disability, autism or both, to use NHS 111 (video by NHS England)
Coronavirus Resources (National Autistic Society) Autism: Easyread information and videos (NHS) Our position - MMR vaccine' (National Autistic Society) Talk About Autism (online discussion forum for children and young people) ![]() Your Community (National Autistic Society online discussion forum) ![]() Autism Spectrum disorders including Asperger's syndrome (Contact, charity with families with disabled children ![]()
|
Our resources |
Visit our library to read Can I tell you about autism? A guide for friends, family and professionals by J. Welton and J. Telford. Or have a |
Name | Back Pain |
Related to/Also known as | see also Pain, Ankylosing Spondylitis |
Symptoms |
Most cases of back pain are caused by strains and minor injuries, rather than more serious causes |
Types |
|
Useful national contacts | BackCare ![]() Versus Arthritis ![]() Helpline 0800 5200 520 National Ankylosing Spondylitis Society ![]() Tel. 020 8948 9117 Email This email address is being protected from spambots. You need JavaScript enabled to view it. |
Children & young people | Back Pain in Children (Patient website) ![]() |
Online resources |
Coronavirus - information for people with neurological problems (Brain & Spine Foundation) New guidelines on lower back pain and sciatica (National Institute for Health and Clinical Excellence, November 2016) Health & Safety Executive ![]()
|
Our resources |
The library at The Brain Charity has a range of resources on Back Pain and on a wide range of disability-related issues. Visit our library to read our copy of Arthritis Research UK's booklet on Back Pain. |
Name | Behavioural Variant Frontotemporal Dementia |
see Fronto-temporal Dementia |
Name | Behçet's Disease |
Related to/Also known as | Behçet's Syndrome |
Symptoms of Behçet's Disease |
Behçet's Disease is a chronic condition which happens because of disturbances in the body's immune system. The system becomes over-active and produces unpredictable outbreaks of unwanted and exaggerated inflammation. As a result, symptoms occur wherever there is a patch of inflammation, and can be anywhere where there is a blood supply, the most common outbreaks being mouth ulcers. |
Types | |
Useful national contacts | Behçet's UK (formerly Behçet's Syndrome Society)![]() Helpline: 0845 130 7329 |
Children & young people | How are children affected by Behçet's? (Behçet's UK)![]() |
Online resources | Coronavirus (COVID19) (Behçet's UK)![]() Behçet's Disease (NHS Choices) ![]() Behçet's syndrome (Versus Arthritis) Behçet's Syndrome (Vasculitis UK)
|
Our resources |
Visit our library to read our copy of Arthritis Research UK's booklet What is Behçet's Syndrome? |
Name | Bell's Palsy |
Related to/Also known as | |
Symptoms of Bell's Palsy |
Bell's Palsy is a condition in which one side of the face becomes paralysed. It is usually temporary, and the majority of cases start to get better within three months. The exact cause of Bell's Palsy is unknown, but it is believed that viral infection of the facial nerve is commonly involved. |
Types | |
Useful national contacts |
Bell's Palsy Association Facial Palsy UK |
Children & young people | Bell's palsy in children (Facial Palsy UK)![]() |
News and events | |
Online resources |
Facial Palsy UK statement on Coronavirus
Coronavirus - information for people with neurological problems (Brain & Spine Foundation)
Bell's palsy (NHS Choices) Bell's Palsy (Facial Palsy UK)
|
Our resources | The library at The Brain Charity has a range of resources on Bell's Palsy and on a wide range of disability-related issues. |
Name | Brain Aneurysm |
see Aneurysm |