A-Z of Conditions - The Brain Charity

The Brain Charity

A.B.I.

Name	ABI (Acquired Brain Injury)
	See Brain Injury

A.D.D.

Name	ADD (Attention Deficit Disorder)
	See Attention Deficit Disorder (ADD)

A.D.H.D.

Name	ADHD
	See Attention Deficit Hyperactivity Disorder (ADHD)

A.P.S.

Name	APS
	See Antiphospholipid Syndrome

A.V.M.

Name	AVM
	See Arteriovenous Malformation

Acoustic Neuroma

Name	Acoustic Neuroma
Related to/Also known as	Vestibular Schwannoma Neurofibromatosis Type 2
Symptoms of Acoustic Neuroma	A slow growing benign brain tumour (non-cancerous). First symptoms are usually hearing loss or tinnitus, and, more rarely, balance problems.
Useful national contacts	British Acoustic Neuroma Association Tel. 0800 652 3143 www.bana-uk.com Find your local support group: www.bana-uk.com/resources/our-branches
Children & young people	Acoustic neuroma Nicklaus Children's Hospital, U.S.A.
Online Acoustic Neuroma resources	Coronavirus - information for people with neurological problems (Brain & Spine Foundation) www.brainandspine.org.uk/coronavirus-covid-19 Acoustic neuroma (vestibular schwannoma) NHS World Language Videos (U.S. Acoustic Neuroma Association) www.anausa.org/resources/world-language-videos Acoustic neuroma and driving www.gov.uk/acoustic-neuroma-and-driving Living with a condition (The Brain Charity)
News and events
Our resources	The library at the Brain Charity has a range of resources on Acoustic Neuroma and on a wide range of disability related issues.

Acquired Brain Injury

Name	Acquired Brain Injury (ABI)
	See Brain Injury

Alice in Wonderland Syndrome

Name	Alice in Wonderland Syndrome (AIWS)
Related to/Also known as	Todd Syndrome Migraine, Migraine aura Epilepsy Brain Tumour
Symptoms of AIWS	"Case reports illustrate a cluster of related symptoms. Most often, a perception of becoming physically smaller or physically larger in comparison to surroundings is the central detail. However, there may be an impression that a person's surroundings are growing or shrinking rather than the person himself. Other narratives include distortions in visual awareness, including the sense that fixed surroundings are moving." Source: Neurology Times, August 2016) Neurology Times
Useful national contacts	The Migraine Trust (Migraine Action has merged with the Migraine Trust) Tel: 020 7631 6970 www.migrainetrust.org
Children & young people	Alice in Wonderland syndrome: A rare neurological manifestation with microscopy in a 6-year-old child U.S. National Library of Medicine
Online AIWS resources	Coronavirus - information for people with neurological problems (Brain & Spine Foundation) www.brainandspine.org.uk/coronavirus-covid-19 The Alice in Wonderland syndrome (PubMed) www.ncbi.nlm.nih.gov/pubmed/10767914 "I have Alice in Wonderland syndrome" (The Guardian newspaper, 2008) The Guardian Living with a condition (The Brain Charity)
Our AIWS resources	The library at the Brain Charity has a range of resources on Alice in Wonderland Syndrome (AIWS) and on a wide range of disability related issues. Visit our library to read our copy of the Brain and Spine Foundation's booklet on Migraine, which includes information on Migraine Aura.

Alzheimer's

Name	Alzheimer's
Related to/Also known as	Dementia
Symptoms of Alzheimer's	Dementia is a term used to describe various different brain disorders, that have in common a loss of brain function that is usually progressive and eventually severe. The most common type of dementia is Alzheimer's Disease. Symptoms of dementia include loss of memory, confusion and problems with speech.
Types	There are over 100 different types of dementia, including Alzheimer's Disease. For more information see the Alzheimer's Society website
Useful national contacts	Alzheimer's Society (England, Wales and Northern Ireland) www.alzheimers.org.uk Helpline: 0300 222 1122 Find your local support service: Alzheimer's Society Carer Information and Support Programme (CrISP) Alzheimer's Society - CrISP Alzheimer's Scotland www.alzscot.org Helpline: 0808 808 3000 Find your local support service: Alzheimer's Society Scotland
Children & young people	Explaining dementia to children and young people (Alzheimer's Society) Explaining dementia Resources for Children and Young People (Dementia UK) www.dementiauk.org/children-and-young-people
Online Alzheimer's resources	• Effect of coronavirus on people living with dementia (The Brain Charity) Vaccines for coronavirus (COVID-19) (Alzheimer's Society) www.alzheimers.org.uk/get-support/coronavirus/vaccine-covid-19 Coronavirus: Questions and answers (Dementia UK) www.dementiauk.org/get-support/coronavirus-covid-19/questions-and-answers Should a person with dementia wear a face mask for coronavirus? (Alzheimer's Society) www.alzheimers.org.uk/blog/should-person-dementia-wear-face-mask-coronavirus Coronavirus: Information for people affected by dementia (Alzheimer's Society) Coronavirus: Information for people affected by dementia Vaccines for coronavirus (COVID-19) (Alzheimer's Socity) www.alzheimers.org.uk/get-support/coronavirus/vaccine-covid-19 Alzheimer's disease (NHS website) www.nhs.uk/conditions/alzheimers-disease Your unforgettable friend: a dementia-friendly activity booklet brought to you by Puzzler and The People’s Friend Publications in other languages (Alzheimer's Society) www.alzheimers.org.uk/get-support/publications-and-factsheets/publications-other-languages Living with a condition (The Brain Charity)
News and events
Our Alzheimer's resources	The library at The Brain Charity has a range of resources on Alzheimer's and on a wide range of disability related issues. Visit our library to read our copy of the Alzheimer's Society's booklet "Talking To Children About Your Illness".

Aneurysm

Name	Aneurysm
Related to/Also known as	See also Subarachnoid Haemorrhage (S.A.H.)
Symptoms of Aneurysm	A brain aneurysm is a balloon-like swelling resulting from a weakness in the wall of one of the blood vessels supplying blood to the brain.
Types	If the aneurysm bursts/ruptures that results in a bleed this is brain haemorrhage.
Useful national contacts	BASIC (Brain and Spinal Injury Charity) www.basiccharity.org.uk Phone: 0161 707 6441 Email: This email address is being protected from spambots. You need JavaScript enabled to view it. Brain and Spine Foundation www.brainandspine.org.uk Helpline: 0808 808 1000
Children & young people	"Aneurysms in children under 18 years of age are rare". Pediatric Aneurysms (U.S. Brain Aneurysm Foundation) https://tinyurl.com/yxoqqpzz
Online resources	Coronavirus - information for people with neurological problems (Brain & Spine Foundation) www.brainandspine.org.uk/coronavirus-covid-19 Brain aneurysm (NHS Choices website) https://tinyurl.com/y877n4bv Living with a condition (The Brain Charity)
Our resources	The library at The Brain Charity has a range of resources on Aneurysm and on a wide-range of disability related issues. Visit our library to read our copy of the U.S. Brain Aneurysm Foundation's Youth Fact Sheet 'What is a brain aneurysm?'.

Angelman Syndrome

Name	Angelman Syndrome
Related to/Also known as
Symptoms of Angelman Syndrome	"Angelman syndrome (AS) is a genetic disorder rather than an epilepsy syndrome. AS is a rare condition, which affects about one in 15,000 children... Children have learning difficulties and speech delay that are usually severe. They also have jerking movements, tongue-thrusting ... and a happy mood with sudden bursts of laughter and epilepsy ... " Source: Epilepsy Action
Useful national contacts	AngelmanUK http://angelmanuk.org Email: This email address is being protected from spambots. You need JavaScript enabled to view it. Support line: 0300 999 0102
Children & young people	Sibling support (AngelmanUK) https://tinyurl.com/y6bu3j3y Preparing for adult life (Contact, charity for families with disabled children) https://contact.org.uk/advice-and-support/preparing-for-adult-life
Online resources	The Brain Changer Arts Project (The Brain Charity) Easy-Read guide to Coronavirus from Mencap Coronavirus information and useful links (AngelmanUK) www.angelmanuk.org/coronavirus-information-and-useful-links Angelman syndrome (NHS Choices) https://tinyurl.com/yaqtmygj Angelman syndrome (Contact, charity for families with disabled children) https://tinyurl.com/s37jl4s Angelman syndrome (Epilepsy Action) https://tinyurl.com/y8n87cna Living with a condition (The Brain Charity)
News and Events	Survey: Treatment of Childhood Neurological Conditions (British Paediatric Neurology Association, September 2020) https://www.surveymonkey.co.uk/r/BPNA_JLA_RESEARCH_PSP
Our resources	The library at The Brain Charity has a wide range of resources on disability related issues.

Ankylosing Spondylitis

Name	Ankylosing Spondylitis (AS)
Related to/Also known as	Arthritis
Symptoms of Ankylosing Spondylitis	" Ankylosing spondylitis (AS) ... is a type of arthritis that mainly affects the back, by causing inflammation in the spine. This can make your back, rib cage and neck stiff and painful. "It often starts in people who are in their late teens or 20s." Source: Versus Arthritis
Useful national contacts	NASS (National Ankylosing Spondylitis Society) Phone: 020 8741 15 15, 9.00-12.00 Monday-Friday http://nass.co.uk Find your local branch: https://tinyurl.com/y3u7fold Rare Disease UK www.raredisease.org.uk
Children and yound people	Juvenile Ankylosing Spondylitis (Stanford Children's Health, U.S.) https://tinyurl.com/y5t8r5t2
News and events
Online resources	Advice on COVID19/Coronavirus (NASS) https://nass.co.uk/news/coronavirus-advice-for-people-on-biologic-therapy Ankylosing spondylitis (NHS Choices) https://tinyurl.com/yc7d8ggj COVID-19 and SpA (Spondylitis Association of America) https://spondylitis.org/coronavirus Living with a condition (The Brain Charity)
Our resources	The library at The Brain Charity has a range of resources on Ankylosing Spondylitis and on a wide range of disability related issues. Visit our library to read our copy of the Pain Relief Foundation's booklet on Arthritis, which includes information about Ankylosing Spondylitis.

Antiphospholipid Syndrome (A.P.S.)

Name	Antiphospholipid Syndrome (APS)
Related to/Also known as	Hughes Syndrome Sticky Blood Syndrome
Symptoms of Antiphospholipid Syndrome	APS is sometimes called 'sticky blood syndrome'. This is because people with it have an increased tendency to form clots in blood vessels (also known as thromboses). Any blood vessel can be affected including the veins and the arteries.
Useful national contacts	APS Support UK (formerly Hughes Syndrome Foundation) www.aps-support.org.uk/index.php Tel: 0300 323 9943
Children & young people	Antiphospholipid Syndrome (Riley Children's Health, U.S.) https://tinyurl.com/y6fvuuzn
Online resources	Information about the COVID-19 virus for people with APS (APS Support UK) www.aps-support.org.uk/self-help/covid-19-information Antiphospholipid Syndrome (APS) (NHS Choices) https://tinyurl.com/yces9app "Hughes Syndrome: simple to treat but all too often ignored" (Daily Telegraph, February 2009) https://tinyurl.com/y63b9qpp Living with a condition (The Brain Charity)
Our resources	The library at the Brain Charity has a range of resources on Antiphospholipid Syndrome and on a wide range of disability related issues.

Aphasia

Name	Aphasia
Related to/Also known as	Dysphasia
Symptoms of Aphasia	Aphasia is an acquired disorder of language, usually caused by stroke, head injury or other neurological condition. People with aphasia find it difficult to understand, speak, read or write language; yet their intellect remains intact.
Types
Useful national contacts	Stroke Association www.stroke.org.uk Helpline: 0303 303 3100 Find your local support group: https://tinyurl.com/y9opk5au • Stroke Friends: stroke and aphasia support group meets at The Brain Charity Aphasia Re-Connect www.aphasiareconnect.org
Children & young people	I CAN For parents, practitioners and the children with speech and language difficulties I CAN Help Enquiry Service: 020 7843 2544 www.ican.org.uk Afasic Parents' Helpline 0300 666 9410 Monday & Wednesday: 10.30am to 4.00pm. www.afasic.org.uk Language Disorders: Aphasia (Royal Children's Hospital Melbourne) https://tinyurl.com/yxh8sl7o
News and events	Aphasia project on Zoom (the Brain Charity) https://thebraincharity.org.uk/whats-on/events/the-brain-charity-events/aphasia-project-sat-09-jan-2021 Neuro Device, a Polish company, has developed an innovative rehabilitation system for people with post-stroke aphasia (April 2018) https://tinyurl.com/yb3g8lck You can watch the Polish ambassador to Britain talking about this on YouTube: www.youtube.com/watch?v=Mv987r23C-M
Online resources	Information on coronavirus for stroke survivors (Stroke Association) ww w.stroke.org.uk/finding-support/information-coronavirus-stroke-survivors Aphasia (NHS Choices) https://tinyurl.com/y92oory4 Aphasia (Contact, charity for families with disabled children) https://tinyurl.com/rbzvq7m Living with a condition (The Brain Charity)
Our resources	The library at The Brain Charity has a range of resources on Aphasia and on a wide range of disability related issues. Visit our library to read the book Children with Acquired Aphasias by Janet A. Lees.

Apraxia

Name	Apraxia
	See Dyspraxia

Arachnoiditis

Name	Arachnoiditis
Related to/Also known as
Symptoms of Arachnoiditis	Arachnoiditis describes inflammation which occurs inside the spine, around the spinal cord and spinal nerve roots. Can develop after back injury, spinal surgery, infections such as meningitis, and sometimes after injections into the spine. Pain comes from nerve roots and generally impacts the lower parts of the body, but can affect the spine in the head, neck and upper back. Damaged nerve roots can cause muscle spasms and jerks, and weakness of muscles.
Types
Useful national contacts	The A Word Support Group www.theaword.org
Children & young people	Arachnoiditis (Child Neurology Foundation, U.S.) https://tinyurl.com/yy9p697g
Online resources	Coronavirus - information for people with neurological problems (Brain & Spine Foundation) www.brainandspine.org.uk/coronavirus-covid-19 Arachnoiditis (U.S National Organization for Rare Disorders) https://tinyurl.com/ya35xw9x Arachnoiditis (U.S. National Institute of Neurological Disorders and Stroke) https://tinyurl.com/kz6sf Living with a condition (The Brain Charity)
Our resources	The library at The Brain Charity has a range of resources on Arachnoiditis and on a wide range of disability related issues. This includes a copy of the Arachnoid Trust's booklet What is Arachnoiditis? by Lina Talbot.

Arnold-Chiari Malformation

Name	Arnold-Chiari Malformation
	See: Chiari malformation

Arteriovenous Malformation (A.V.M.)

Name	Arteriovenous Malformation (AVM)
Related to/Also known as	Arteriovenous Fistula (AVF) Angioma Arteriovenous Anomaly Cavernous Malformation Venous Malformation Pulmonary Arteriovenous Malformations (PAVM)
Symptoms of Arteriovenous Malformation	AVMs can occur in the brain, spine, lungs, kidneys and the skin. They occur following the abnormal development of blood vessels, which produces a tangle of blood vessels.
Types
Useful national contacts	The Butterfly AVM Charity www.butterflyavmcharity.org.uk
Children & young people	Arteriovenous Malformations (for Parents) (KidsHealth website) https://tinyurl.com/yxat2ooc Venous malformations (Great Ormond Street Hospital) https://tinyurl.com/y48mulks
Online resources	Coronavirus - information for people with neurological problems (Brain & Spine Foundation) www.brainandspine.org.uk/coronavirus-covid-19 Arteriovenous Malformation (AVM) (The Birthmark Support Group website) https://tinyurl.com/ya3k2x7h Arteriovenous malformation and driving (GOV.UK) You must tell the DVLA if you have an arteriovenous malformation https://tinyurl.com/ya3k2x7h Vascular malformations of the brain (Brain & Spine Foundation) https://tinyurl.com/yxmenbgf Arteriovenous Malformation Information Page (U.S National Institute for Neurologogical Disorders and Stroke) https://tinyurl.com/y2t2ll3n Living with a condition (The Brain Charity)
Our resources	The library at The Brain Charity has a range of resources on Arteriovenous Malformation (AVM) and on a wide range of disability related issues. This includes a copy of the Brain & Spine Foundation's booklet "Vascular Malformations Of The Brain".

Arthritis

Name	Arthritis
Related to/Also known as	Inflammatory Arthritis Osteoarthritis Rheumatoid Arthritis Ankylosing Spondylitis
Symptoms of Arthritis	Arthritis is a condition involving inflammation of the joints, which may then become very painful. Note that Arthritis is not a neurological condition; however, there are several conditions that come under both Arthritis and Neurological Conditions as an 'umbrella' term.
Types	There are over 200 different types of arthritis. The most common is Osteoarthritis, which usually develops gradually over a few years. Rheumatoid Arthritis is a condition which causes the joints in your body to become inflamed. It can be persistent or occur in flare-ups. The Versus Arthritis website includes a list of types of aArthritis.
Useful national contacts	Arthritis Care and Arthritis Research UK have joined forces and are now Versus Arthritis www.versusarthritis.org Free helpline 0800 5200 520, Monday-Friday, 9.00a.m.-8.00p.m. Find your local support group: www.arthritiscare.org.uk/in-your-area N.R.A.S. National Rheumatoid Arthritis Society www.nras.org.uk Helpline: 0800 298 7650 Find your local support group: www.nras.org.uk/groups
Children & young people	Juvenile Idiopathic Arthritis (JIA) (Versus Arthritis) www.versusarthritis.org/about-arthritis/conditions/juvenile-idiopathic-arthritis Young people (Versus Arthritis) Support for children and young people https://tinyurl.com/y22ebufv
Online resources	Coronavirus (COVID-19) - what is it and where to go for information (Versus Arthritis) www.versusarthritis.org/news/2020/march/coronavirus-covid-19-what-is-it-and-where-to-go-for-information Coronavirus and Rheumatoid Arthritis (NRAS) www.nras.org.uk/coronavirus-and-ra Arthritis (NHS Choices website) www.nhs.uk/conditions/arthritis/pages/introduction.asp RheumatoidArthritis.org (An American organisation with lots of information on their website) www.rheumatoidarthritis.org Living with a condition (The Brain Charity)
Our resources	The library at The Brain Charity has a range of resources on Arthritis and on a wide-range of disability related issues. This includes copies of booklets by Arthritis Research UK.

Asperger's Syndrome

Name	Asperger's Syndrome
Related to/Also known as	Autism Spectrum Disorders Autism
Symptoms of Asperger's Syndrome	Asperger's Syndrome is a form of autism, a condition which affects the way a person communicates and relates to others. People with Asperger's Syndrome have difficulty in communicating and with social relationships, and exhibit a lack of imagination and creative play. They have fewer problems with language compared with those with autism, and do not usually have the accompanying learning difficulties associated with autism.
Types
Useful national contacts	Asperger's Syndrome Foundation www.aspergerfoundation.org.uk The National Autistic Society Helpline: 0808 800 4104, 10-4 Mon-Fri www.nas.org.uk
Children & young people	Parents and carers (National Autistic Society) https://tinyurl.com/y6nwgrjm Family support (National Autistic Society) https://tinyurl.com/jua6ryx
Online resources	The Brain Changer Arts Project (The Brain Charity) Coronavirus Resources (National Autistic Society) www.autism.org.uk/services/helplines/coronavirus/resources.aspx How to support a pupil with Asperger’s Syndrome (School Badge Store) https://tinyurl.com/r597y3q Warning: So-called cures and dodgy interventions (National Autistic Society, March 2019) www.autism.org.uk/about/what-is/causes/cures.aspx What is Asperger Syndrome? (National Autistic Society) www.autism.org.uk/asperger Autism spectrum disorder (NHS Choices) https://tinyurl.com/y8qho33a Autism Spectrum disorders including Asperger's syndrome (Contact, charity with families with disabled children https://tinyurl.com/rejr3f5 Lesser-known things about Asperger's syndrome (BBC Ouch blog) www.bbc.co.uk/news/blogs-ouch-28746359 Living with a condition (The Brain Charity)
News and events	Coronavirus: Government clarifies guidance on exercise (National Autistic Society, 9 April 2020) www.autism.org.uk/get-involved/media-centre/news/2020-04-09-guidance-on-exercise-coronavirus.aspx Survey: Treatment of Childhood Neurological Conditions (British Paediatric Neurology Association, September 2020) https://www.surveymonkey.co.uk/r/BPNA_JLA_RESEARCH_PSP
Our resources	The library at The Brain Charity has a range of resources on Asperger's Syndrome and on a wide range of disability related issues. Visit our library to read Freaks, Geeks & Asperger Syndrome: A user guide to adolescence by Luke Jackson.

Ataxia

Name	Ataxia
Related to/Also known as	Cerebellar Ataxia
Symptoms of Ataxia	People with Ataxia have problems with co-ordination and balance. Cerebellar Ataxias are a group of rare neurological disorders, many of which are inherited. There is large variation in the severity of the different types, and the rate of progression varies between individuals.
Types	Cerebellar Ataxias - often designated by numbers, see the information on the Ataxia website below. Friedreich's Ataxia (FA/FRDA) - an inherited, progressive condition, which affects the nervous system. Ataxia-Telangiectasia - A-T is a rare, degenerative, inherited disease which affects many parts of the body and causes severe disability.
Useful national contacts	Ataxia UK www.ataxia.org.uk Helpline: 0845 644 0606 Find your local support group: https://tinyurl.com/yanv3doj • The Ataxia NW Support Group meets at The Brain Charity • The Ataxia NW Support Group now meets online using Zoom A-T Society Supports people living with ataxia-telangiectasia Tel. 01582 760733 www.atsociety.org.uk
Children & young people	Sibling care (Ataxia UK) Advice for young people living with someone with ataxia www.ataxia.org.uk/news/sibling-care Friedrich's ataxia (Ataxia UK) www.ataxia.org.uk/FAQs/friedreichs-ataxia Education and A-T (A-T Society) The A-T Society can offer help and guidance to Education Professionals https://tinyurl.com/yyg2b4cn
Online resources	Coronavirus (covid-19) update for people with ataxia (Ataxia UK) www.ataxia.org.uk/news/coronavirus-covid-19-update-for-people-with-ataxia Ataxia (NHS Choices) https://tinyurl.com/y86rqab3 For speech and language therapists (Ataxia UK) www.ataxia.org.uk/news/speech-and-language-therapy About Ataxia Telangiectasia (Action for A-T) https://actionforat.org/about-us/about-a-t Living with a condition (The Brain Charity)
News and events
Our resources	The library at The Brain Charity has a range of resources on Ataxia and on a wide-range of disability related issues. You can read our copies of Ataxia UK booklets, including "Ataxia: a Parent's Guide".

Attention Deficit Disorder (A.D.D.)

Name	Attention Deficit Disorder (ADD)
Related to/Also known as	Attention Deficit Hyperactivity Disorder (ADHD)
Symptoms of Attention Deficit Disorder	ADD is a common condition, affecting more boys than girls. It is an impairment of either activity or attention control (or both), and impacts on concentration, impulse control, hyperactivity, motivation and time awareness.
Useful national contacts	ADDISS www.addiss.org.uk Tel: 020 8952 2800 Find your local support group: www.addiss.co.uk/ukgroups.htm ADDers www.adders.org Tel: 0871 590 3693
Children & young people	Information specifically for Teenagers (ADDers) www.adders.org/infoteens.htm Preparing for adult life (Contact, charity for families with disabled children) https://contact.org.uk/advice-and-support/preparing-for-adult-life
Online resources	The Brain Changer Arts Project (The Brain Charity) Attention deficit hyperactivity disorder (ADHD) (NHS Choices) https://tinyurl.com/b97j45k Attention Deficit Hyperactivity disorder (Contact , charity for families with disabled chldren) https://tinyurl.com/twaq85w Living with a condition (The Brain Charity)
News and Events	Survey: Treatment of Childhood Neurological Conditions (British Paediatric Neurology Association, September 2020) https://www.surveymonkey.co.uk/r/BPNA_JLA_RESEARCH_PSP
Our resources	The library at The Brain Charity has a range of resources on Attention Deficit Disorder (ADD) and on a wide range of disability related issues. Visit our library to read Creating Kids Who Can Concentrate: Proven strategies for beating A.D.D. without drugs by Jean Robb and Hilary Letts. Or have a look in your local library for this book.

Attention Deficit Hyperactivity Disorder (A.D.H.D.)

Name	Attention Deficit Hyperactivity Disorder (ADHD)
Related to/Also known as	Attention Deficit Disorder (ADD) PANS (Paediatric Acute-onset Neuropsychiatric Syndrome)
Symptoms of ADHD	A common condition, affecting more boys than girls. It is an impairment of either activity or attention control (or both), and impacts on concentration, impulse control, hyperactivity, motivation and time awareness.
Types
Useful national contacts	ADDISS Tel. 020 8952 2800 www.addiss.co.uk ADDers.org Tel. 0871 590 3693 www.adders.org ADHD Foundation 151 Dale Street, Liverpool L2 2AH Tel. 0151 237 2661 www.adhdfoundation.org.uk
Children & young people	Information specifically for Teenagers (ADDers) www.adders.org/infoteens.htm Preparing for adult life (Contact, charity for families with disabled children) https://contact.org.uk/advice-and-support/preparing-for-adult-life
News and events	Survey: Treatment of Childhood Neurological Conditions (British Paediatric Neurology Association, September 2020) https://www.surveymonkey.co.uk/r/BPNA_JLA_RESEARCH_PSP
Online resources	The Brain Changer Arts Project (The Brain Charity) Attention deficit hyperactivity disorder (ADHD) (NHS Choices) https://tinyurl.com/y93nt8ul Attention Deficit Hyperactivity disorder (Contact , charity for families with disabled chldren) https://tinyurl.com/twaq85w Living with a condition (The Brain Charity)
Our resources	The library at The Brain Charity has a range of resources on ADHD and on a wide range of disability related issues. Visit our library to read Can I tell you about ADHD? A guide for families, friends and professionals by S. Yarney and C. Martin. Or have a look in your local library for this book.

Autism

Name	Autism
Related to/Also known as	Asperger's Syndrome
Symptoms of Autism	Autism is a lifelong developmental disability, which affects the way a person communicates and relates to people around them. People with autism have difficulties with everyday social interaction, with social communication (including not understanding facial expressions and tone of voice), and with imagination. This triad of impairments can occur by itself, but is often accompanied by other developmental disorders and learning disabilities. "The National Autistic Society is clear that there is no link between autism and the MMR vaccine." Source: National Autistic Society
Types
Useful national contacts	The National Autistic Society www.autism.org.uk Helpline: 0808 800 4104 Telephone interpretation service: www.autism.org.uk/services/helplines/main/interpretation Autism Initiatives www.autisminitiatives.org/default.aspx Autism Assistance Dogs https://tinyurl.com/ybqkgqea Scottish Autism www.scottishautism.org Tel. 01259 720 044 Autism Northern Ireland www.autismni.org Tel. 028 9040 1729 Autism Cymru www.autism-cymru.org Tel: 02920 463 263 Autistica charity which funds and campaigns for research to understand the causes of autism, improve diagnosis, and develop evidence-based interventions www.autistica.org.uk
Children & young people	FACT (Families of Autistic Children Together) www.factautism.org.uk Parents and carers (National Autistic Society) https://tinyurl.com/y6nwgrjm Family support (National Autistic Society) https://tinyurl.com/jua6ryx Ambitious About Autism (for children and young people with autism) www.ambitiousaboutautism.org.uk Tel. 020 8815 5444 Preparing for adult life (Contact, charity for families with disabled children) https://contact.org.uk/advice-and-support/preparing-for-adult-life
News and Events	Information about coronavirus vaccines (National Autistic Society) www.autism.org.uk/advice-and-guidance/topics/coronavirus/health/information-about-upcoming-coronavirus-vaccines Survey: Treatment of Childhood Neurological Conditions (British Paediatric Neurology Association, September 2020) https://www.surveymonkey.co.uk/r/BPNA_JLA_RESEARCH_PSP Blue Badge rules have changed in England for autistic people (National Autistic Society, 2019) https://tinyurl.com/ybxx4v32 'Media speculation about US President's views on autism' (National Autistic Society, February 2017) https://tinyurl.com/y5ljkh5q 'Vaccines not linked with autism, study finds' (NHS website, May 2014) https://tinyurl.com/y2yedtd9
Online resources	The Brain Changer Arts Project (The Brain Charity) Help for people with a learning disability, autism or both, to use NHS 111 (video by NHS England) www.england.nhs.uk/learning-disabilities/about/resources/help-for-people-with-a-learning-disability-autism-or-both-to-use-nhs-111 COVID-19: Supporting autistic people and people with learning disabilities (Social Care Institute for Excellence) Coronavirus Resources (National Autistic Society) www.autism.org.uk/services/helplines/coronavirus/resources.aspx Autism: Easyread information and videos (NHS) www.nhs.uk/conditions/autism/easy-read-and-videos Our position - MMR vaccine' (National Autistic Society) https://tinyurl.com/yy6gp9m2 Talk About Autism (online discussion forum for children and young people) www.talkaboutautism.org.uk Your Community (National Autistic Society online discussion forum) http://community.autism.org.uk Autism Spectrum disorders including Asperger's syndrome (Contact, charity with families with disabled children https://tinyurl.com/rejr3f5 Living with a condition (The Brain Charity)
Our resources	The library at The Brain Charity has a range of resources on Autism and on a wide-range of disability related issues. Visit our library to read Can I tell you about autism? A guide for friends, family and professionals by J. Welton and J. Telford. Or have a look in your local library for this book.

Back Pain

Name	Back Pain
Related to/Also known as	see also Pain, Ankylosing Spondylitis
Symptoms	Most cases of back pain are caused by strains and minor injuries, rather than more serious causes
Types	neck pain whiplash shoulder pain frozen shoulder ankylosing spondylitis slipped disc sciatica
Useful national contacts	BackCare www.backcare.org.uk Versus Arthritis www.versusarthritis.org Helpline 0800 5200 520 National Ankylosing Spondylitis Society www.nass.co.uk Tel. 020 8948 9117 Email This email address is being protected from spambots. You need JavaScript enabled to view it.
Children & young people	Back Pain in Children (Patient website) https://tinyurl.com/y6sk6wqj
Online resources	Coronavirus - information for people with neurological problems (Brain & Spine Foundation) www.brainandspine.org.uk/coronavirus-covid-19 New guidelines on lower back pain and sciatica (National Institute for Health and Clinical Excellence, November 2016) www.nice.org.uk/guidance/ng59 Health & Safety Executive www.hse.gov.uk/msd/backpain/livingwith.htm Living with a condition (The Brain Charity)
Our resources	The library at The Brain Charity has a range of resources on Back Pain and on a wide range of disability-related issues. Visit our library to read our copy of Arthritis Research UK's booklet on Back Pain.

Behavioural Variant Frontotemporal Dementia

Name	Behavioural Variant Frontotemporal Dementia
	see Fronto-temporal Dementia

Behçet's Disease

Name	Behçet's Disease
Related to/Also known as	Behçet's Syndrome
Symptoms of Behçet's Disease	Behçet's Disease is a chronic condition which happens because of disturbances in the body's immune system. The system becomes over-active and produces unpredictable outbreaks of unwanted and exaggerated inflammation. As a result, symptoms occur wherever there is a patch of inflammation, and can be anywhere where there is a blood supply, the most common outbreaks being mouth ulcers.
Types
Useful national contacts	Behçet's UK (formerly Behçet's Syndrome Society) http://behcets.org.uk Helpline: 0845 130 7329
Children & young people	How are children affected by Behçet's? (Behçet's UK) https://tinyurl.com/y3o4qfkd
Online resources	Coronavirus (COVID19) (Behçet's UK) hhttps://behcets.org.uk/coronavirus-covid-19 Behçet's Disease (NHS Choices) https://tinyurl.com/yav92lrn Behçet's syndrome (Versus Arthritis) https://tinyurl.com/ss8rabu Behçet's Syndrome (Vasculitis UK) www.vasculitis.org.uk/about-vasculitis/behcets-disease Living with a condition (The Brain Charity)
Our resources	The library at The Brain Charity has a range of resources on Behçet's Disease and on a wide range of disability-related issues. Visit our library to read our copy of Arthritis Research UK's booklet What is Behçet's Syndrome?

Bell's Palsy

Name	Bell's Palsy
Related to/Also known as
Symptoms of Bell's Palsy	Bell's Palsy is a condition in which one side of the face becomes paralysed. It is usually temporary, and the majority of cases start to get better within three months. The exact cause of Bell's Palsy is unknown, but it is believed that viral infection of the facial nerve is commonly involved.
Types
Useful national contacts	Bell's Palsy Association www.bellspalsy.org.uk Tel: 0870 4445 460 Facial Palsy UK www.facialpalsy.org.uk Tel: 0300 030 9333
Children & young people	Bell's palsy in children (Facial Palsy UK) https://tinyurl.com/y5ftwyqt
News and events
Online resources	Facial Palsy UK statement on Coronavirus www.facialpalsy.org.uk/news/facial-palsy-uk-statement-on-covid-19-and-bells-palsy/ Coronavirus - information for people with neurological problems (Brain & Spine Foundation) www.brainandspine.org.uk/coronavirus-covid-19 Bell's palsy (NHS Choices) https://tinyurl.com/y74d9a8e Bell's Palsy (Facial Palsy UK) https://tinyurl.com/y956po5h Living with a condition (The Brain Charity)
Our resources	The library at The Brain Charity has a range of resources on Bell's Palsy and on a wide range of disability-related issues.

Brain Aneurysm

Name	Brain Aneurysm
	see Aneurysm

More Articles ...

Page 1 of 5