Ataxia

Name	Ataxia
Related to/Also known as	Cerebellar Ataxia
Symptoms of Ataxia	People with Ataxia have problems with co-ordination and balance. Cerebellar Ataxias are a group of rare neurological disorders, many of which are inherited. There is large variation in the severity of the different types, and the rate of progression varies between individuals.
Types	Cerebellar Ataxias - often designated by numbers, see the information on the Ataxia website below. Friedreich's Ataxia (FA/FRDA) - an inherited, progressive condition, which affects the nervous system. Ataxia-Telangiectasia - A-T is a rare, degenerative, inherited disease which affects many parts of the body and causes severe disability.
Useful national contacts	Ataxia UK www.ataxia.org.uk Helpline: 0845 644 0606 Find your local support group: https://tinyurl.com/yanv3doj • The Ataxia NW Support Group meets at The Brain Charity • The Ataxia NW Support Group now meets online using Zoom A-T Society Supports people living with ataxia-telangiectasia Tel. 01582 760733 www.atsociety.org.uk
Children & young people	Sibling care (Ataxia UK) Advice for young people living with someone with ataxia www.ataxia.org.uk/news/sibling-care Friedrich's ataxia (Ataxia UK) www.ataxia.org.uk/FAQs/friedreichs-ataxia Education and A-T (A-T Society) The A-T Society can offer help and guidance to Education Professionals https://tinyurl.com/yyg2b4cn
Online resources	Covid-19 vaccine update (Ataxia UK) https://www.ataxia.org.uk/latest-news/covid-19-vaccine-update/ Coronavirus (covid-19) update for people with ataxia (Ataxia UK) www.ataxia.org.uk/news/coronavirus-covid-19-update-for-people-with-ataxia Ataxia (NHS Choices) https://tinyurl.com/y86rqab3 For speech and language therapists (Ataxia UK) www.ataxia.org.uk/news/speech-and-language-therapy About Ataxia Telangiectasia (Action for A-T) https://actionforat.org/about-us/about-a-t Living with a condition (The Brain Charity)
News and events
Our resources	The library at The Brain Charity has a range of resources on Ataxia and on a wide range of disability-related issues. You can read our copies of Ataxia UK booklets, including "Ataxia: a Parent's Guide".