The Brain Charity

Parkinson's

P

Name	Parkinson's
Related to/Also known as	Idiopathic Parkinson's Disease
Symptoms of Parkinson's	A progressive neurological condition, which can affect talking, walking, swallowing, writing etc. Characterised by slowness in the initiation and performance of movement, and sometimes tremor, usually at rest. • The British Deaf Association has information in BSL about Parkinson's.
Types
Useful national contacts	Parkinson's UK www.parkinsons.org.uk Tel: 0808 800 0303 Find a support group near you: www.parkinsons.org.uk/content/local-groups • The Liverpool Central Parkinson's UK Support Group meets at The Brain Charity Dance for Parkinson's Network UK www.danceforparkinsonsuk.org
Children & young people	Talking to children and teenagers (Parkinson's UK) https://tinyurl.com/y3e3nxge Younger People's Groups Tel. 0808 800 0303 www.parkinsons.org.uk/youngerpeoplesgroups
Online resources	Understanding Coronavirus and Parkinson's (Parkinson's UK) www.parkinsons.org.uk/news/understanding-coronavirus-and-parkinsons Dance for Parkinson's (English National Ballet on YouTube) www.ballet.org.uk/project/dance-for-parkinsons Parkinson's disease (NHS website) www.nhs.uk/conditions/parkinsons-disease Muscle cramps and dystonia (Parkinson's UK) https://tinyurl.com/y49j24ya Physiotherapy works: Parkinson's (Chartered Society of Physiotherapists factsheet) https://tinyurl.com/nb2bjv8 Parkinson's Disease (U.S. National Center for Complementary and Integrative Health) https://nccih.nih.gov/health/parkinson-disease Understanding Parkinson's (U.S. Parkinson's Foundation) www.parkinson.org/understanding-parkinsons information in Accessible Formats and Other Languages (Parkinson's UK) www.parkinsons.org.uk/information-and-support/accessible-formats-and-other-languages Living with a condition (The Brain Charity)
News and events	• Patient Online Survey: Swallowing difficulties in people with Parkinson's disease (NCEPOD, January 2020) The survey will lead to a report for healthcare professionals on how they can improve care https://tinyurl.com/ujgkytr
Our resources	The library at The Brain Charity has a range of resources on Parkinson's and on a wide range of disability-related issues. For example, visitors to our library can read lots about diet and Parkinson's. Visit our library to read Our Mum has Parkinson's by Karen Goodall, who was diagnosed with Parkinson's at the age of 32. Or have a look in your local library.

Speech Tremor Swallowing